Isaiah s t r u g g l e d for over 10 hours yesterday to poop. He was really hurting. The meds stop him up. We've never prayed so much for poop. After BMs at 1:30 a.m., 3:30 a.m., 5:30 a.m., and 8 a.m., he's smiling again.
Today's a big day - spinal tap and bone marrow draw at 3. The results are key.
Here are some words we're hanging onto today:
from Darrell, the dad of Matthew, Isaiah's roommate: There are some things that God says that just don't make sense unless you're suffering.
from Isaiah, early this morning while he was receiving a platelet infusion: Why do you cry sometimes when you're happy? (me: are you happy now?) Yes...because I finally feel better.
(Isaiah continues) Do you remember that movie about the football team, Dad? (me: I think so) If we win, we'll praise God. If we lose we'll praise God.